15 May 2016
Danii’s Gift announced by PM Turnbull and Minister Ley
“The announcement today from PM Turnbull and Health Minister Sussan Ley of $54M is a recognition that Continuous Glucose Monitors (CGM) are live saving and life changing. Importantly it is also a clear acknowledgement to the work of the Danii Foundation who has led the charge for this funding.” said Susan Alberti AC, Chair of the Danii Foundation
The Danii Foundation is a national body dedicated to improving the lives of Type 1 Diabetics and their families, founded after the death of Daniella Meads-Barlow aged 17.
“Daniella died in her sleep as a result of Nocturnal Hypoglycemia, an unnecessary death that claims at least another young Australian every week a death that could have been avoided with a continuous glucose monitor.” said Donna Meads-Barlow, founder of the Danii Foundation
“The Foundation has stridently advocated for funding to prevent unnecessary deaths and ensure the best management of Type 1 Diabetes through Continuous Glucose Monitoring. Currently detection of blood sugar levels is via an archaic finger pick.”
“The Danii foundation made a compelling argument to both government and the opposition demonstrating how funding CGM could reduce waste in our public hospital setting, via unnecessary admissions, and horrific morbidity including limb amputation, blindness and kidney failure.”
“It is fantastic to see the PM and Minister Ley respond to the calls of the Danii Foundation. Whislt JDRF focuses on research and Diabetes Australia the delivery of a broad support program, the Danii Foundation took on supporting T1d’s and their families and particularly funding for CGM funding, which government has today responded to .” said Susan Alberti AC
“An extensive international literature review demonstrates the risk of a Type 1 diabetic dying in their sleep is between 4.7 and 27.3% of deaths to T1D’s. In real terms this means anywhere between 7,000 and 28,000 Australians go to bed every night not knowing if they will wake the next morning.”
“We are thankful that the government is funding best practice and preventing unnecessary deaths, This is the prime reason we set up the Foundation so it is gratifying to see such as positive result today.” Said Donna Meads-Barlow.
We look forward to working with government in the implementation of this policy. Danii’s primary focus is to ensure that every dollar promised by government reaches Type 1 Diabetics. We know in the past that administration fees have taken precious funding away from providing care and support. The Danii Foundation will assist in whatever way it ensure every cent of funding supports Type 1 diabetics.” said Susan Alberti AC, Danii Chair
THE DANII FOUNDATION: The Face of Type 1 Diabetes Across Australia
Contact: Justine Caines 0408 21 02 73